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Opinion: Stuck in the Middle - World Mental Health Day 2022

Oct 10, 2022
by Matt Wragg  
Header for Matt s Op Ed pieces.


Words: Matt Wragg


In my head I think of these pieces as my annual mental health columns. With that kind of timeline I usually spend some time trying to shape my thoughts into something that makes sense - a beginning, middle and end. Where I started, what happened, how it ended.

For the past few years that has happened naturally - my first was a year out from my nervous breakdown, so I had enough time to get through the worst of it and attempt to offer some hope from the other side. My second and third years were a continuation of the same theme, steps towards what I hoped would be going back to a life that didn’t look too different from before. They were milestones about which I could hopefully make a point and try to leave the reader with something to think about.

This year I have been staring at a page trying to write something for months, but nothing comes. Right now I don’t know how to talk about what I’m going through, how to package it all up in 1,500 words and tie it off with a bow.

Last Autumn, a month or two after I wrote my last column, I found out that I am probably autistic.

Blindsided doesn't start to cover it. It is not underselling it to say that I had never seriously thought of myself in those terms. After all, using Google MD, it is too easy to convince yourself that you have at least four cancers and a malignant personality disorder, and as someone with a diagnosed anxiety disorder I know to stay well away.

High-functioning was the word my psychologist used. Reading a little, I guess I would probably fall into what used to be called the Aspergers camp, although I also identify with many of the traits that would once have been codified as Pervasive Development Disorder, today I believe it is snappily referred to as Pathologic Demand Avoidance. I don’t like the urge to micro-classify things, it feels dishonest to me, so I tend to think of it as simply “autistic”, or on “on the spectrum,” if you must.

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The one thing I am sure of is that when I try to explain this to people and they say, “Oh, you have light autism”, that does not feel right. There is little light about some of the moments from the past few years, but maybe that is unfair to the autistic people who can’t function in day-to-day life like I can.

Truth be told, I don’t even have a formal diagnosis. My (now former) psychologist did a good job of convincing me that there as no point in getting a diagnosis at my age. Because I don’t fit the criteria to be considered disabled, it was tough luck bucko. She did something of a number on me with this - dropping an atom bomb of a revelation on my life, then leaving me to pick up the pieces without so much as a pamphlet to guide me, and the fixed idea that there is not help coming.

How are you supposed to deal with the idea of finding out something like this near your 40th birthday? How do you reconcile this with half a lifetime of experiences?

One of the big differences I have found between anxiety and autism is that there is a lot more material out there for anxiety, practical resources to help you deal with the day-to-day. There are a lot more people talking about their experiences, and that does make a difference - I would love to have found a book, blog or podcast by someone who I can relate to. It would be nice to have a template for how to try and deal with things, rather than having to invent something each time.

Since my psychologist told me that she thinks I’m autistic, it has uprooted my whole world. It provides an explanatory narrative to my nervous breakdown, it explains so many events from my past that hurt me, it even explains things that I didn’t realise were hurting me. It may sound silly, but feeling like I have permission to admit that I find people confusing, to know that in social situations it is normal for me to struggle, has been such a weight lifted from my shoulders.

In the past, when a social situation went badly or stressed me out, I took responsibility for it. After all, if everybody else seems to know what is going on, it must be my fault things are going badly, right?

The narrative of autism feels like it is going to be enormously helpful in the years to come, because one thing I have learned over the past years is that learning more about how I am wired has helped me reshape my life in a positive way. But that comes at a cost, reassessing your life is no light or easy thing to do. The past year has been very tough and it is not finished.

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On my weaker days, I hate the idea of being autistic. Because I see anxiety as a problem, one that I felt like I was on my way to solving. Stupid or not, I honestly believed that I could beat anxiety and get past it. Being autistic is permanent, there is no solving it, and I want to throw try my toys out of the pram in protest.

I try not to dwell on what I am dealing with in these pieces, but feel like I am falling down that trap because I don’t know what this is all going to mean for me. I don’t know how I am going to feel about it or how to explain it to anyone else. It’s just tough - but maybe that’s the point?

It would be nice to think that mental illnesses are nice, clean thing like a broken bone. You visit the hospital, get the x-rays and cast, and a few weeks later (with a little luck) you are whole once more. For me, I struggle with the idea that there was a simpler, happier state somewhere in my past that I want to get back to, but the truth is this is probably little more than a lie my brain is telling me.

Progress does not come in the shape of nice, clean trajectory where you feel better as the journey goes, the reality is that there will likely be phases where things get tougher again. What I do not buy into is the myth that mental illness magically conveys strength to its sufferers. I can only speak for myself, but throughout my tribulations I have never felt strong. The only thing I have ever done is put one foot in front of the other, take one day at a time. And that is where I am today, one step at a time, focusing on the process not the goal.

On my better days, I see that my idea of a happier past is rose-tinted bullshit. I have been speaking to a new therapist and have found some connections who can help me get a formal diagnosis, but quite honestly I am afraid of that process may bring so have been putting that off. On those better days I know that I need to keep going, because the evidence of recent years shows me that if I can keep learning more to deepen my understanding of how my brain works, then maybe, just maybe, the real happier days are yet to come. Although where I am today may not be much fun, I am closer to that goal than I was last year.

Author Info:
mattwragg avatar

Member since Oct 29, 2006
754 articles

171 Comments
  • 177 2
 I got diagnosed at age 30 and it marked a fundamental change for me. If you feel like this is the thing you need to move forward (like I did), then try to get the diagnosis (if you have the resources of course). Your age doesn’t matter and your psychologist should have provided you with the help you needed to get this process started. Feel free to reach out to me if you have any questions @mattwragg I have tons of resources from autistic folks who helped me find my way through all of this. I also felt very alone and misunderstood, especially as a bike rider but I promise, it’s getting better and I wouldn’t want to have it any other way.
  • 19 0
 @mattwragg, @zonaec put's it beautifully, but just to echo that sentiment: I've worked with several people who have been diagnosed in later life - I'm in the cliche profession for this, IT. without exception they've said that whilst it was a bombshell at the time, it has proved really beneficial in both understanding experiences from their past, that they had found hard to reconcile, and also in understanding how they interact with the world going forward. One of them hadn't gone for the formal diagnosis for the same reasons you identified, but once the first shock of the diagnosis was over, he definitely felt really glad to know a few years later.

Maybe it's helpful to ponder that you already achieved a lot of amazing stuff in your life, the fact that you're here reaching all of us is testament to that, and you did all of that *before* you knew your diagnosis. So, in a way, whilst it's not a diagnosis you wanted, it could allow you to achieve even greater things.
  • 27 1
 Matt - I was diagnosed as being on the autistic spectrum just before I was 40. It is very weird, and I get where you're coming from! My wife had suspicions before, and I always thought that I'd done ok up to that point in my life so why bother? I didn't feel like it would change anything and left it for quite a few years.
Unfortunately things took a downturn then, with a breakdown in my marriage and stress at work. I ended up taking time off work to recover and it was a very challenging time. Long story short, I got the diagnosis, and it has been very positive for me since.
I would say that the benefits are in understanding yourself. I suddenly had a reason why I struggled socially, why I found certain environments challenging (anywhere noisy like bars and clubs), and why my relationships with others could suffer. I don't blame myself for that any more, and can manage my environment to allow me to function better. My wife and I understand that emotionally I can shut down if I'm overwhelmed, or that I'm just not that good at certain types of emotional support. That resolved lots of the issues we were having and everything got back on track... Plus it gives me a get out clause to not do grown up family stuff I don't want to do, or just avoid all the adults and spend my time playing with my kids! I have made reasonable adjustments at work to help me out too... I don't really feel any negatives have come out of the process?
Don't get me wrong - there's still tough days or days where you wish you were nero typical, and everyone's personal experiences are different, but just to tell you my experience so that you don't dismiss a diagnosis without the full information about how it could help you.
I wish you all the best. Happy to answer questions if you want to pm me too...

Finally, I quite like this article. It made me realise why I love mtb so much, and I genuinely believe it to be one of the best sports for anyone autistic - you don't have to keep conversation going all the time, and it always gives you stupid stuff to chat about!
www.mbr.co.uk/news/mountain-biking-mental-health-371357
  • 3 3
 @zonaec interesting to hear your take on the diagnosis. My 8yr old stepdaughter is autistic and was diagnosed several years ago - she’s fairly high-functioning but has a lot of social and learning difficulties. It still isn’t clear to my partner and I how to best to discuss the topic with her (she does know she’s diagnosed as autistic but I don’t believe she has any comprehension of what that means just yet) as while she’s certainly different to other kids her age, she doesn’t like being made to feel different and will reject any such suggestion quite violently. I’m inclined to think that we should discuss it very openly, that the sooner she embraces it the better, and that the short term pain of accepting that her brain works differently to her friends will be worth the long term gain of being able to understand herself a bit better and be better able to bridge the social gaps that are slowly widening for her (the behavioural gaps by contrast are actually narrowing for her so that’s good).

I’m also inclined to think that the diagnosis itself kind of shouldn’t change anything in your self perception especially for older people - the diagnosis is a description of (some of the factors that make you) who you are; who you are does not change based on the diagnosis. You’re still the same person with the same history, personality, qualities, flaws and characteristics regardless of whether you have a diagnosis. Maybe it makes it easier to “forgive” yourself for some of the difficulties you have/had though? And I guess it offers somewhat of a path forward towards learning more about whatever tools and mechanisms may help you.

I’d be super appreciative of any input you have, as it is very hard for me to get inside the head of a young kid who doesn’t communicate in a similar manner to me.
  • 4 0
 Thanks for posting this article Matt. As someone in the same situation as you (I tick most of the Aspergers boxes - currently waiting for official diagnosis) it's good to hear others experiences. Speaking personally, I have found that riding has helped a lot with underlying mild depression over the years.
  • 1 0
 @nataspihsrow: In this case I'd definitely try to talk to one or more professionals. It's so easy for us adults who've lived 5x their lifetimes to think of any unit of time _very_ differently than kids (just a brief shock and it'll soon be over), and especially when navigating something so complex as social interactions as an 8 yr old on the spectrum. Without intending to, one can stir up or kickstart a whirlwind of effects in the kid that one couldn't anticipate.

Impossible to say if your intuition is right or wrong, but I feel like these shallows must be navigated very carefully Smile
  • 92 2
 Well done. This is one of the most important and best articles ever posted on Pinkbike. Helping normalising mental health is so important and If it helps just one person seek help it’s been an amazing success.
How does riding your bike make you feel? Does it help? If my bike has a name it’s The Slayer of Sadness, or maybe The Defeater of Depression. Ridng regularly is such an important part of maintaining my mental health.
  • 44 0
 Riding my bike has always been my happy place - in autism literature they talk of a special interest that people focus on for their whole lives - bikes are mine, I guess. I never get tired of them, it's probably why I do this for a living...
  • 3 0
 I don't ride bikes for a living, but I do ride my bike to work, to the shops, to bring kids to school, to pubs etc. A stupid grin pops out from nowhere. Living in a flat country, this has always been easy and the way to go. But now with pedal assist, anyone (with access to such gear) can do this. Not sure whether you already do but otherwise this may be a way to get more riding in. No need to rush, no need to perform or even do much preparation, just go where you need or want to go.
  • 1 0
 @mattwragg: I'm much happier on my bike than in social situations - just getting out and away from people is sometimes all i need! thanks for your story matt :-) the only reason i wouldn't go and ask for a diagnosis is the astronomical cost, and lack of mental health professionals in Australia at the moment :-( i would rather spend more on my bike gear!
  • 60 1
 This is my favourite pinkbike article ever. As a young mountain biker who also suspects that she might have autism, having an older, more established rider talking about his struggles is amazing. having someone i can look up to who is also helping to get rid of the stigma around autism is the best thing for a young person like me- thanks Matt.
  • 41 0
 I don't know what to say, when I'm writing these columns, in my head I tell myself things like "if I can reach one person, it's worth doing," so thank you. And feel free to drop me a message, if you'd like to chat about any of this.
  • 5 0
 I've had significant experience with mental health in recent years, both with a diagnosis of autism and suffering stress for myself, my wife having depression/anxiety, and a family member committing suicide. I also regularly deal with such issues at work. It sounds extreme but, genuinely, I'm just a normal guy. (Honest!)
What I will say is that, as this page is testament to, everyone has some issues or knows someone who has issues with mental health. Usually it's minor but not always. Overwhelmingly though, when you open up to people you'll be amazed how many people are sympathetic. Talking always helps, and if you aren't sure who to talk to there's lots of support agencies or there, or even just shoot the sh*t on here!
All the best!
  • 52 1
 A beautiful testimony on a sensitive subject Matt. I have suffered from depression for a long time, my son struggles with his mental health too, it's so hard to find help. And I can't hear the phrase "whatever doesn't kill makes you stronger" anymore. Courage mec !
  • 12 1
 Merci et courage pour ton fils aussi. Malheureusement, l'etat Francaise ne valorise pas la sante mentale...
  • 7 1
 @mattwragg: Thanks for sharing!

I can recommend the reading of the following book: Traité du zen et de l'entretien des motocyclettes (Zen and the Art of Motorcycle Maintenance: An Inquiry into Values)
  • 6 2
 @mattwragg: ce ne sont pas les seuls malheureusement... Courage à tous and to all.
  • 1 0
 @mattwragg: il semble qu'aucun état valorise la santé mentale malheureusement. Ici au Canada on entend souvent des belles histoires de la Suède, la Norvège, et la Finlande mais est-ce qu'ils sont vrai?
  • 1 0
 @mattwragg: That’s not good. I’ve just moved to France in August to join my wife (she has a work contract). I’ve left everything I know behind and I already had a few things going on before I left. I guess we’ll see if I can get the assist I need when I need it.

My brother in law is 44 and though his family “knew”, he didn’t get his formal diagnosis until well into adulthood. He is here with my sister in law for a visit and I continuously try to work on how to engage with him in a relevant way and to help him engage the world in a meaningful way. It’s difficult when the world is built for the “majority”.

Bonne santé Matt.
  • 1 0
 @iammarkstewart: In France, if you have a mutuelle (the health insurance that anyone in employment has - you might be covered by your wife's), it should cover the cost of seeing a psychiatrist, but probably NOT a psychologist, because the former are qualified medical professionals, while the latter are not necessarily. Hope that helps.
  • 2 0
 @BenPea: @iammarkstewart My mutuel covers 4 psychologist appointments a year... it's bullshit. I don't know how it is in other countries, but when I spoke to a psychiatrist, you get a 30 minute session, he was not interested in listening to me at all, then prescribed me a bunch of meds without any accompanying information or discussion...
  • 1 0
 @mattwragg: ah yes, I guess they're a bit like ostheopaths and chiropractors, in that some mutuelles will pay for 4 or 6 appointments a year. I saw a psychiatrist who told me that I wasn't the problem, so I was pretty chuffed with his service all told. Luck of the draw as well...
  • 3 0
 @iammarkstewart: The issue with mental health in France is that psychoanalysis is still very prominent (it's the only country with Argentina where it is so for some reason), and although it has slowly started to change, many psychatrists learned their job with this approach (freudian stuff, or at best psychodynamic), in short it says that most mental health issues are caused by bad parenting in the early years.

Sure an ADHD kid may have it tough and develop BPD... but there's a strong probability that it's because one or both of his parents also have ADHD ! And an autistic kid may get bullied at school and have no family support, but maybe his parents have ASD as well, and the whole family is more or less alexithymic, and so the "emotionnal language" is just kinda absent from this family, leaving the poor kid with no way to communicate on his issues.
So it's not about blaming the parents and creating tensions in the family (sure if there's a narcissist it's better to take a bit of distance), it's about helping them as well.
Some will still tell you that you can't have autism if you can look someone in the eyes, or that medication of ADHD is turning kids into vegetables.
Then if you have anxiety they'll give you anxiolitics, but if it's an ADHD induced anxiety that's a psychostimulant you need... so you'll take meds for years without any real progress cuz' that's just not the right diagnosys from the start...

So you never know if youll be lucky enough to find a good psychatrist, or a bad one (but I'd say it's not just France).

So if you want a good psychatrist for ADHD for instance you should try to contact an ADHD association that can point you to a good one in your region, same for autism, you should try to contact an organisation that has a repertory of autism specialists.
When you read about medication, it's about finding the right one, and the right dosage. So when a psychatrist tells you "take this, good bye",

In case of doubts about ASD, ADD or whatever after your own research, I'd suggest to do a neuropsy check up first, with a neuropsychologist, as a neuropsy should logically NOT have a psychoanalysis background and instead have a cognitive/neuropsy background. I don't think it would give you a definite diagnosys but it'll help you have a better idea.
  • 23 2
 Matt, thank you for putting down these words.
My own experience of mental health is that it is a messy shifting topic that can be as barbaric as surgery. We trust the professionals to make us better in the long run, accepting that we may be wounded by their actions in that goal, but at least with surgery there is more procedure to control consent and being informed to make those choices. With mental health, the being informed is the cut of the scalpel.
I like your resolution of focusing on the process rather than an end goal, as expectations can be debilitating, and as you said, may not even be real or achievable, depending on how much your brain may have manipulated your past.

I think this is where MTB fits in with the story, it certainly does for me. Not that a bike ride is a magic wonder-pill that will cure all woes, but an opportunity for respite from your own mind.
That said, a bike ride will only work if you temper your expectations. Training your brain is like training your body; no one ride will fix anything, every ride will come with a mix of progress and setbacks, and pushing too hard will always lead to injury.

Keep safe, hope you find yourself in a happier place than you were before, wherever it ends up being.
  • 6 0
 I get you - I had an awful time with meds when I first had my breakdown and it left a mark for sure... I actually found this earlier this year, which is the kind of information I think I would have wanted at the time: www.stuffthatworks.health

Yeah, MTB helps, but I tend to think of what I use to soothe myself as a toolbox - few jobs can be accomplished with a single tool, it's better to be able to grab five when you need them: MTB (well, sport), meditation, therapy, walking, breathing, diet, fasting, herbs, supplements are all in there for me.
  • 1 0
 @mattwragg: Oh yeah, riding bikes is just one way of clearing the head, soothing the anxiety, and regrounding in the present and depending on mood/ energy/ situation/ proximity to trails etc, other options are always needed. But given this platform, getting out for a ride is the one we here can all relate to.
  • 15 0
 I really love this article Matt. And I feel for you.
A couple years ago my world came crashing down with several traumatic and life-changing events happening, my depression and anxiety was out of control, and a mental illness I later found out was obsessive compulsive disorder suddenly began to take over every waking hour of my life. I’ve been receiving professional help for the last 2 years and I found out I am autistic, have ADHD, OCD, and cPTSD.

Before all of this, I never allowed myself to consider that I could have a disorder because growing up, my parents would always invalidate and scrutinize any struggles I came to them with. And that became how I treated myself too. I thought, “I can’t be depressed. If I had real depression I would know it because it would be so much worse than this”. Then I start therapy and I am told I am experiencing very severe clinical depression with psychotic features. I honestly couldn’t believe it.
All those years I went without help and I took responsibility for every single thing that I struggled with. Beating myself up, calling myself weak and lazy and stupid. Feeling horrible about myself.
It has been absolutely life-changing learning that this is not all my fault. I hear this happening in your story too and I’m very happy for you. You deserve grace in your tough situations, and you deserve to give yourself tons of credit for managing life as well as you have. Seriously. You should be very proud of yourself.

For those who find out we are autistic later in life like us, it often happens as a result of a very serious burnout, crisis, or nervous breakdown. Autistic traits and struggles are often amplified during periods of high stress. Unfortunately that seems to be what it takes for a lot of us to be able to see those autistic traits in ourselves. So if it helps, you might be able to look at these tough years with a silver lining that you were able to learn a lot about yourself and you’ll come out on the other end more equipped than before to handle future struggles and build your life the way you want and the way that works for you as a person with unique needs.

Side note, if you haven’t learned about autistic “masking” yet, I recommend looking into it. I found it very helpful to understand.

Proud of you, and keep taking life one step at time. I’m standing with you in solidarity.
Cheers 3
  • 13 1
 France sucks big time for mental health. We're still stuck with freudian crap. It's slowly getting better with autism and ADHD slowly being recognised. Gotta gether a lot of informations by yourself and find a good therapist, preferably a younger one or at least some one who's up to date.

I suggest you read Tony Attwood "Guide to Asperger", it's kind of the reference book on high functioning autism.
And same for you significant other (and trusted relatives), as that may be where there's the more issues.
Also it's not only up to the autist to adapt, it's up to both people to kind of meet up in the middle.

Also, about 50% of people with ASD (autism sprectrum disorder) show signs of ADD, so looking into it may be good too.

One thing everyone should know (just to have a guess if they're not feeling one or someone else), is that he observed 4 coping strategies for people with undiagnosed autism :
-Reactive nervous breakdown (self-explanatory, maybe what happened to Matt)
-Escape into imagination (the lonely kid who's better in his own world, books, video games, or with an imaginary friend, etc)
-Chameleon, where the autist observes and imitates the other to "fit in", but sometimes at the cost of developping a "false self" and losing his own sense of self, which can probably lead to a depression. Girl may act as chameleon more than guys as there are more "social expectations" from girls)
-Denial and arrogance : Probably the worst one, as the autistic person exteriorises the cause of his struggles, so when there's an issue it's not him, it's the others. And "intoxicates" himself with this behaviour possibly turning into some quite toxic people who refuse to second guess, who always blame others, who misunderstand difference of opinion as deliberate intent to harm them, etc...

And I wouldn't be surprised if many people with some sort of BPD (borderline) are in fact people with undiagnosed ASD (autism spectrum disorder) or AD(H)D, and a life strong struggle of feeling different (I say some sort of BPD as BPD is supposedly caused by childhood traumas, but maybe feeling different all your life is in itself a form of trauma ?).
  • 4 1
 "France sucks big time for mental health."

I have a friend who moved over the border from France to Switzerland so she could get more support for her son. I don't think things are great over here, but one hell of a lot better...
  • 6 0
 This chameleon label interests me. As I feel like I do everything to fit in I can for everybody else and it takes so much out of me that there’s little for me left. Almost like it’s a physical/mental stress and I’m exhausted.

Thanks for the info.
  • 4 0
 I will look that book up. I think I have covered all four of those boxes in my life... I try hard not to be cold and arrogant towards people, but fear I may have done that a lot in the past. It's part of the worry for me socially, I am constantly checking myself to make sure I'm not going down that route. What I would also say, is that I'm not sure that in the future we will see ADHD as a separate thing to autism. I personally believe that it's part of the same thing. I have talked to a few people with ADHD diagnoses about my autism as they were the people I felt could empathise with what I was going through and I feel like I maybe vibrate on the same frequency as they do... When I first spoke to someone who is now a good friend, we chatted on the phone as complete strangers for 5 hours, we clicked in a way that is quite rare, and when she told me that she received an ADHD diagnosis this year I wasn't surprised in some ways...
  • 2 3
 I'd still want a second opinion from someone more interested in my sex life
  • 1 0
 @mattwragg: It's fun that you put it so clearly.
I have no diagnostic but I surely am somewhere on the spectrum as my dad is most likely undiagnosed ASD/impulsive ADD with some behaviour akin to BPD, and I'd say my mom is ADHD but super-empathic.
Me I was not "weird enough" to warrant a diagnosys, but weird enough to be the lonely kid and miss out on most of my life for, with some sort of mental collapse which could have been the end of me.
Anyway, like you I find that I'm attracted to atypical people (friendly or romantically), I've seen a study on this, and the atypical people indeed had a high probability of being in a relationship with another atypical. But why, I don't know, except that we probably "fonction in a similar way", it almost looks like there's some invisible things going on sometimes.

About ADHD/ASD being the same, yeah I wonder this as well.
WHen you search the web for "ASD/ADD differences" you get lot of pages starting with "oh they're very different !" and ending with "ADD can look a lot like ASD and vice versa"...

So while I wouldn't guess if they're the same or not, I'd say the cause may be similar, but we'd need better dignosys, not just a label, more like some sort of "histogram equaliser" telling you where you're good and where you struggle (IQ, theory of mind, impulsivity, alexithymia, etc)
  • 1 0
 @itslightoutandawaywego: Yep, worth a look, the chameleon coping strategy can probably happen in ADHD as well. I've read ASD or ADD people who struggle with social skills can become "people pleaser" in hope that things will work (often leading to being taken advantage of, or to misunderstandings).
Sometimes they may also suffer from rejection sensitive dysphoria which is quit problematic.
  • 16 0
 Damn as a fellow autistic mountain biker I really appreciate this article.
  • 2 0
 Thank you.
  • 9 0
 All I know is riding my bikes have helped me a ton to manage life with kids and work. So many people live in the dark, so I try to help them see the light. I've given away helmets, pads, pedals, tires and all sorts of stuff to try and get my friends into cycling. Thanks for sharing Matt and good luck to everyone.
  • 4 0
 Thank you.
  • 9 1
 I'm pretty sure I have a ton of disorders or whatever they're called, looking back on my life I'm convinced but I'll keep trucking on whilst discovering more about myself. I'll probably never go to a therapist but who knows. Thanks for the read Matt, as I learn about others I learn about me.
  • 9 0
 I used to think I would never go to a therapist, and I still put it off if I can... I worried it would change me or something. But, in honesty, if you find someone who you click with as a therapist (and modern online therapy helps you do find the right one, not just the closest), then it can be life-changing. I maintain that if I could only keep two of the things I have done to try and heal myself, meditation and therapy would be the two I'd keep.
  • 1 0
 @mattwragg: Amen to this! Meditation and therapy. Thanks for sharing Matt. Your words go a long way. Keep doing what you're doing and have faith in yourself and the process.
  • 8 0
 I used to have really bad anxiety that would quickly convert to depression, but this last year I was forced to quit drinking coffee (stomach acid - esophagus issues) and I almost feel normal now…one week of headaches was worth it.
  • 4 0
 Does the same to me. Caffeine is the worst thing for me during anxious episodes.
  • 2 0
 @ct0413: the added bonus is that if I actually “need” caffeine due to bad sleep, or a wild weekend, etc. the caffeine actually works.
  • 8 0
 I can't thank you enough for this Matt. Bringing the the phrase "Pathologic Demand Avoidance" to the world.

My teenage son is autistic, suffers from exteme anxiety and PDA. Subsequently hasn't been to school for 4 years (lockdown didn't help here). Yet trying to get help from the local authority is near impossible. "He's fine in school". No he's bloody not, he just uses all of his energy to make it look like that and then explodes when he gets home. We're presently going through a zero-demand process to help him recover his self-esteem. Maybe one day we'll talk about tutoring, or even returning to school. But in the meantime if he is confident enough to eat a meal with us, or perhaps consider riding his bike, then thats a bonus.

Mental illness is still hidden away with nowhere near enough understanding in place to lead to the support thats required. Its all very well having "World mental health awareness day" but it takes personal experiences to really highlight the issues.
  • 6 0
 While it sounds hard for you, I am so happy that your son has that kind of support around him, hats off to you. I have wonderful parents, who would have done similar, but back in my day, I got good grades and nobody in the school cared about how I was beyond that. I had hoped things had moved past that. I suspect that in the coming years, more people around my age will come forwards as people start to understand more about autism and different neurotypes, and I hope your son will become an adult in a world that is easier to navigate.
  • 3 0
 @mattwragg: ir-bandito, our son also masked at school only to meltdown once he was with his family. It was a very tough ride, until we made the decision to homeschool and embrace a low/no-demand lifestyle.

While there isn’t much info our there, there is some. The UK-based PDA Society is the best we have found. pdasociety.org.uk
  • 8 0
 I’ve talked about being “on the spectrum” to riding buddies across disciplines for a long time.

The obsessive tendencies that make someone ride a bike 20-30 hours a week while working a full time job, or spending hours on bike maintenance mean that cycling is a sport that attracts those of us who are wired a little differently.

The solitude of cycling (even for road racers on a team) can also feel like a refuge from personal interaction.

I wish you the best on your journey Matt. It’s no coincidence you are an avid cyclist. Hopefully the cycling community will continue to be a refuge and place of healing for you.

It is for me.
  • 1 0
 Wow, kudos for this - touched me!
  • 7 1
 Thanks for sharing mate, the more people that do the less of stigma attached to Autism as a whole. My daughter had a recent diagnose; even at her young age it has given her clarity and a better understanding of herself - food for thought.
  • 4 0
 I'm stoked for her that you found that out early - I feel like that doing this at 40 when I have a wife, house and career to juggle is so much harder and knowing earlier would maybe have saved so much unnecessary hurt over the years. Hats off to you.
  • 6 0
 All morning and 26 comments. Its easy for hundreds of us to moan about through headset routing; but an actual opinion piece about a challenging subject...
Thank you for opening up and writing this Matt, and @BrianPark I hugely appreciated this article, even if your tracking metrics might score it lowly.
  • 4 3
 Americans are still in bed
  • 6 0
 It could be getting lots of views with the comedy crowd respectfully keeping quiet?

Excellent article.
  • 5 0
 Matt, you are going to be Ok. Your bravery is huge to come on this site talk about your inner most fears and illness, exposing yourself to world I am impressed. I have had broken bones and heart surgery and yeah you are right those things heal over time. But the journey is where you find more out about yourself, and others, whit that you gain wisdom. It may at times looking at others and you say to yourself they have it great, they are healthy no care in the world. But the reality is, that person may have cancer, an incurable cancer that they live with daily. I could go on, no one has a perfect life. No one. Your bravery is serving others in ways you might not know. I commend you! God bless you Matt.
  • 2 0
 Thank you.
  • 5 0
 Same boat here, Always had the ADHD tag but since modern mental health threw us all in the spectrum bucket, it all makes alot more sense.

This line resonated with me "It provides an explanatory narrative to my nervous breakdown, it explains so many events from my past that hurt me, it even explains things that I didn’t realize were hurting me. It may sound silly, but feeling like I have permission to admit that I find people confusing, to know that in social situations it is normal for me to struggle, has been such a weight lifted from my shoulders."

I still take personal accountability for my actions and my part in social interactions but having a better understanding of my deficits makes the whole thing alot easier; its no longer some un-explained puzzle that I struggle with, its an understandable challenge I can now work on.

My wife is a Marriage and Family Therapist, that's similar credentials to a phycologist but a different focus. I have been to multiple therapists LSW's, Psychologists and Psychiatrists have not provided much support, i feel they are better suited for people that are lower functioning.

I recommend everyone in a similar situation read the DSM-5 for yourself it is their bible for diagnosis and you should certainly read it for yourself.

As I interact with people I understand I am A-typical, but I have value, compassion, and community; I realize that most people of personality quirks and are A-typical in their own ways, which brings me back to "what is normal"

If you are kind and considerate, understand self reflection, and share a common bond, that's my criteria for friendship. Surprisingly there are tons of great people in my friends group despite none of them ever being mainstream popular of likeable.

f*ck the self imposed limitations we put on ourselves to be anything other than the best we can come up with.

P.s. Anxiety is a bitch ain't it, way harder to find your place inside your own head than it is to find your own place in society.
  • 5 0
 My son was diagnosed PDA at a young age. It's been a rough journey, primarily because I started off with the idea that he needed "fixing". He doesn't - my approach to him did. I've learned a lot, and continue to learn, and I wouldn't change him for the world. Good luck on your journey - there's more support for, and a better understanding of, neurodiversity nowadays, but it's still a bumpy ride. I hope you manage to find support from people who don't want to "fix" you.
  • 6 2
 Labeling may help to accept what is.

We are all different.
You are a unique human being.
Think of your capabilities.
Who would miss you if you were gone?
What would be missing on this world if you would not contribute?

This world is all about experiences. Stay curious, keep exploring!

Thanks for sharing, deep respect for your courage and openness.

You are not alone, my fellow seeker.

Eckhard Tolle "The power of now" has opened my eyes. But it is still hard to see.

Oh - and of course: Mountainbiking is worth to take a whole lot of shit!
  • 3 0
 Curiosity is everything. Thanks.
  • 4 0
 Mental heath wise I know that I like many others have my own issues. I have never sought labels for them as I have not felt the need with my personal issues although I have sought help. I have friends with children that are going through diagnosis and the best thing I have heard them say is that an autism diagnosis is not a problem or issue but an explanation. You have got this far in life so a diagnosis should not be an explanation and allow you to seek help with strategies to deal with some of the challenges that this presents and a better understanding of why you do some of the things you do.

I like a stereotypical man don't talk enough about feelings and mental health but I am starting to learn and I think it is making me "better". Articles like this are so important as between the article and the comments people realize that they are not alone with their own struggles with mental health. Thank you.
  • 4 0
 That is precisely where I am - having the label has started to allow me to advocate for myself, ask for adaptations and considerations that help, without getting anxious that I'm being awkward or difficult by asking. It's a positive, but it's easy to forget that what may look positive over the timescale of a lifetime can at the same time be difficult over the timescale of this week, month or year...
  • 4 0
 Big ups to @mattwragg on this. Going through therapy has been more of a guidance but not a solution. I haven’t found what I’ve been looking for in working, not too much to take pride in or boast about on a resume or CV.

Thanks for bringing light to your experience, opening the conversation and reducing the polarity of it all.
  • 1 0
 Thanks, I hope you find your answers.
  • 4 0
 Delving into the mysteries of astrophysics and quantum mechanics (two complete opposites) really helped me deal with anxiety. Realizing that we're all a collection of probabilistic particles, bound together by strange forces, placed within a seemingly infinite universe filled with billions of galaxies just like our own Milky Way, helps me get past anxieties that invariably crop up throughout the day. The incredibly small probability and likelihood of any of us, emerging from the ether to existence is staggering when you think about it. Thing is, you just have to find a way to place things into your own perspective, and realize that everything and nothing matters in the end, the only thing that matters is NOW and your own perception of it. I realize this may seem like complete blather, but it's taken me a long time to land at this personal conclusion.
  • 4 0
 Had a similar situation. Pretty severe breakdown from a stressful period in my life. A relationship broke down, lost my business, had 4 friends and my uncle suicide all in the space of less than 2 months. Ended up being a complete shut in because I couldn't mentally cope - Saw a therapist and got diagnosed with agoraphobia, generalised anxiety disorder, depression/bipolar (it's amazing what the brain does/creates to protect itself from stress/over stimulation). Started on the SSRI skittle fest the docs prescribed. Only thing that seemed to help was getting out into isolated nature either hiking & riding my bike. Was still struggling after years of therapy and my therapist made me fill out a questionaire. She checked it & immediately got me booked in for an Autism assessment. Ended up getting diagnosed a few months later & it was like I had answers to the majority of situations in my life. While it answered alot of questions and made me understand myself better it didn't much change the way I felt each day, just made me better equipt to deal with it - as most of them where autism related. It's nice to know there are others out there like me, but also sad to know others suffer in a similar way.
  • 4 0
 I can very much relate to this. It's been clear to me for a long time that I'm likely on the spectrum. It works for my job, so that's nice. Apparently normal people just assume I'm an asshole when they first meet me because I don't relate to others in a normal way but once they get to know me they realize that I'm just different. At least that's what my in-laws tell me...and they seem to like me a lot. I realize that I'm not normal and I try extra hard to be nice to everyone because of it, but I can't help but come off as quite cold. It's not an easy way to do things because you feel like a cog that doesn't quite fit into the machine. I watch other people have normal emotions and I understand how and why they're feeling those things, but I don't have the same reaction.
  • 4 0
 I don't think it was touched on in the article, but I also think it's important to note that autism is not a mental health problem, but a developmental one. In the same way that down syndrome or cerebral palsy are developmental conditions, not mental health disorders.

Many people with autism (or other developmental disorders) often experience mental health problems (which the article touched on. Ie - anxiety, depression, etc), but autism itself is not a precursor to those issues.
  • 1 0
 Thank you so much for mentioning this. An important distinction.
  • 4 1
 Thanks for sharing Matt, I empathize and hope you get the help and support you need. I think looking at it like you've gotten an important part of the puzzle with this can be helpful. There is no cure, but there are lot's of people with autism living great lives.
  • 10 0
 Thank you. I do want to say that I don't feel like I need curing - in the good moments it feels amazing, my brain feels fast and powerful, and the 'diagnosis' has let me embrace my intelligence that I had learned to hide during my school days... when I am on my own I don't feel different, what I hope for is that world might make space for me to be. Realistically, having the word is starting to empower me to advocate for myself without getting anxious that I'm being difficult for the people around me.
  • 3 0
 Reading that article was striking! it felt like it could have been written directly about me; looks like that might be same for a few of us here. @mattwragg know that you're not alone & the journey is worth it. let me know if want to chat through shared experiences brother!
  • 1 0
 I don't think I have your number, be good to catch up regardless.
  • 3 0
 Beautiful bit of writing Matt.
A couple things. Opinions are just that, even those of professionals. You're WAY more than any diagnosis. Autism is just one of a number of neuro-types amongst us, with different advantages and deficits. Maybe explore the strengths in your ruminations?

www.penguinrandomhouse.com/books/673207/visual-thinking-by-temple-grandin
  • 3 0
 I had a panic attack earlier this year and have since been working on decreasing my anxiety. It's a fight, but I've been managing it better lately. My one piece of advice is to check out work from Jon Kabat Zinn. He has a number of books and audiobooks that give practical ways of bringing "mindfulness" and "meditation" into daily life. It has been the cornerstone of my progress so far.
  • 3 0
 We have come a long way on this topic. Back in the day you were told things like toughen up, get back in there & what the hell is wrong with you? This can happen to anyone, any age at any time. I have a loved one going thru some mental health issues & it's very concerning. No easy answers & quite often no quick solutions. It's tough to see the light at the end of the tunnel sometimes.
  • 3 0
 A Haitian proverb that I am constantly reminded of is “Dèyè mòn gen mon” (translates to "Beyond mountains there are mountains"). While at the surface level this may seem daunting to believe that there is not a singular apex which, once achieved, will lead to everlasting happiness. However, the intention is to highlight that the "strength" you mentioned comes from the resilience to keep going while realizing that life is not a simple straight path.

In a similar vein Mark Twain once said, "The only way to keep your health is to eat what you don't want, drink what you don't like, and do what you'd rather not." Supporting people close to me who struggle with anxiety has taught me that for all the calming reassurances and possible solutions I propose, it is up to the individual to take steps to improve (however unpleasant those steps are).

I hope that somewhere in this comment section there is a nugget of wisdom that may give you a moment of solace or encouragement. You aren't alone in your struggle and there are people willing to listen and share your load.
  • 3 0
 I've been working as a psychiatric provider for nearly twenty years. I've always felt the parity between medical and metal health care should be more balanced, but society tends to stigmatize mental health issues, as a result people's willingness to seek out and receive metal health care are impaired. It is a wonder that with the incredible advances in life saving and life extending medical technology and science, we have yet to grasp the importance of mental health. If anything, Western society is worse off mentally now than it was in the past, and it's not getting any better. For people who don't suffer from mental health issues, try imagining how it might be if you did, then be a little bit more compassionate toward others.
  • 3 0
 @mattwragg, I feel this all too well. I am 47 and have PDA Autism as does my 6-YO son. We are all just discovering this, this year. It was a mind-Fu**, to say the least. I can clearly see my past and present and see my son through his eyes now. Like you, I also struggle with anxiety and have had at least one major breakdown that put me in hospital for over a week.

The more we all talk openly about our mental health and what is really going on inside, not just "oh I'm fine, mate" and move on, the sooner all of us can heal as a human race and be able to support each other. Love to you my friend and lean into this, embrace being you and that you are not "different" but rather just that you are you.
  • 2 0
 My daughter was diagnosed on the autism spectrum this year. It has been difficult but also helps me understand her behavior better. I feel more compassionate as a parent but also saddened that some situations-- social interactions, forming long-term friendships, school, etc.--will be hard for her and that she will never "grown into" them. I have to say I felt angry because it took us over 2 years of telling doctors and teachers we didn't feel things were going well and finally taking the testing into our own hands to actually get to this point. I am fortunate to have the resources to do this. For those without, it would be really hard. I am glad she will begin to learn how to approach the world from her own space from a young age rather than just wondering why she doesn't fit the typical mold. Good luck to your family.
  • 1 0
 @wcmitch: My daughter is disabled. Many of her traits are quite similar to autism. When she was young I was told a quote about having a disabled child, and it stuck with me (unfortunately not word for word though!) - it alikened having a disabled child to booking a holiday to Spain where you turn up in Holland. You still have a great time, only it's different!
I am thankful for the fact that my daughter is born into a world that is far more caring and understanding than it's ever been. My parents used to be beaten with a ruler at school if they tried to write left handed! We're now in a place where differences are researched and there is lots of understanding and care out there. There's still a long way to go, but things are getting better all the time. There's even companies out there who actively seek autistic staff as they know that their differences suit the work.
Best of luck to you and your daughter, and well done fighting for the diagnosis - that's a tough battle!
  • 1 0
 @slimboyjim: Thanks man. I will keep that analogy in mind--I can use the reminders at times.
  • 3 0
 @mattwragg
My 7 yo son was recently diagnosed as being on the spectrum and my wife and i have landed on PDA as that really seems to fit his personality. We didn't like the term 'pathological demand avoidance' so we have renamed as Pervasive Demand for Autonomy. We found Kristy Forbes who is fuc&ing amazing. www.kristyforbes.com.au
Thanks for posting this article, and being a real human!
  • 3 0
 I'm a PA in Family Medicine and I will tell you right now the resources for my patients in the behavioral health space is horrendous. And I live in a state where the access to healthcare is top notch. During the pandemic, I'd estimate 50% of my patients dealt with serious depression, anxiety or both at some point. I've tried and tried to find good therapists, psychologists, or psychiatrists, however 9/10 times, my patient comes back and asks "Can you just be my therapist?".

If you are lucky enough to have a MD/PA or NP that listens to you and cares for you and can give you the answers you need, don't take it for granted. Also, don't give up on looking for one - there are top notch PCPs out there, just like anything, it is important you feel a connection with them. That relationship is key to unwrapping the layers and getting hard answers and treatment that will help you navigate through tough times.

But since this is a MTB forum, I will add that at times the best SSRI is a long ride into the woods...
  • 2 0
 @SDtumbleweed Thanks for your work. We lived in Seattle until recently and couldn't find an advocate for my daughter and that was in a city with many resources and no stigma about mental health issues. We moved recently to a small town in Northern Idaho and we're lucky to find a person at her new school that really helped us and it has made all the difference.
  • 2 0
 What's a PA in this context?
  • 4 0
 As a 30+yers old that is waiting for an autism diagnosis in 3 weeks, a big part of your article fits my feelings. I don't know what to write but your article did something inside me.
  • 3 0
 My trip for last 4 years was: 'asthma'->full scale panic attacs for few months (+covid complications)->depression diagnosis->gad diagnosis->theraphy->highly functioning adhd/autism spectrum diagnosis... I'm 37 and it's soooo heavy to finally understand that a lot of things could/should have gone different in my life only if I knew it all before and had the tools to manage the overflow and overwhelm.. The biggest fear of mine is about 'wasting time' and I feel like a lot of it I wasted already - but now I sometimes understand that I was struggling. Thanks for your words and yet another good read about those issues. Take care, one step after another.
  • 3 0
 Hi Matt, Sorry to hear about how the psychologist you were seeing wielded the diagnosis sword. I have a lot of issues with mental health diagnosis, yet as a mental health professional, I have to give individuals a diagnosis if they want their insurance to cover any mental health services. There should be a lot of psycho-education involved when giving someone a diagnosis so that a person can be informed and have a solid framework to understand the symptoms they are experiencing. We should always use person-first language. I hope that you don't feel like your diagnosis defines you. You just happen to be a person who is experiencing some of the symptoms that the DSM defines as being on the spectrum - nothing more. In reality we are all on the spectrum of humanity. Cheers
  • 2 0
 Diagnoses can be informative, but they aren’t the treatment, many people want to “know what they got “, but a diagnosis doesn’t tell you who you are.

I’m not a huge fan of assigning a diagnosis, but it’s required for insurance and it needs to match the medications I prescribe.

After twenty years of diagnosing and treating mental health, I have found that medications are less efficacious than therapy.

In case folks were wondering, there is no medication to treat Autism per se, but medications can be used to treat ancillary conditions like anxiety, insomnia, and impulse control.

The most beneficial treatment is going to be therapy, the development of insight, and practicing skills learned by studying.

Anyone can learn to be a better person.
  • 3 0
 I know I'm late to the party, have been too busy riding to read Pinkbike. Anyway, I had to create an account not only to thank @mattwragg for his piece, but all of you in the comment section. The same experiences, even the same thoughts expressed in the very words I would use.... It's been a moving read. Thank to all of you.
  • 6 1
 Keep pushing, Matt. Thank you for sharing your feelings on this personal yet universal reality.
  • 3 0
 Thank you.
  • 3 1
 Well done for penning this so beautifully raw and sincere... it is an impossibly tough road to walk. I would suggest surrounding yourself with people who understand and have insight, who can support you in the darker days. Strength to you!
  • 1 0
 Thank you.
  • 5 0
 This is well written and vulnerable. The realization can be startling and freeing at the same time.
  • 3 0
 Thank you.
  • 2 0
 Well written piece! As humans, we are all different with a range that is almost infinite in how we respond to our environment and to each other. The way we collectively seek to understand is to by creating models and then snapping ourselves to the ones which seem to fit best.

In reality, those models and the labels associated with them are probably not quite right for any of us. There isn't really a normal is there? But we do have things which we share in common which can keep us connected no matter where we are on that range. We have MTB and so here we are. Thanks for writing this!
  • 2 0
 Matt, appreciate your willingness to put this all out there so honestly. Great read and more importantly, I think it helps a lot of other people who are grappling with their own mental health dilemmas to know that they're not alone in the battle. Cheers man.
  • 3 0
 I went a different path. I just don't care about any diagnosis for myself. I know I have issues, and I know how to work around them. I don't bemoan anyone else trying to solve their problems, just isn't for me.
  • 2 0
 Thank you for sharing. A few stand out pieces for me: Progress isn't linear. Suffering doesn't make you stronger. For me depression or anxiety has come in waves. Then the struggle to "get better" just makes me feel like more of a failure. Too many days of "why can't I get past this?" You're right that often it is key to take one day at a time. Every attempt to get better has its failures, but I try to tell myself that tomorrow is another day to try again. I've been to therapy, got a life coach, read books, kept journals, and tried daily meditation. Amazingly throughout all these episodes if I get on my bike and put in some miles of any kind, things feel better. When I'm at my lowest, my friends and family know the best thing for me is to go ride my bike. You can take everything away from me, but please don't take my bike. Even when I don't want to and the thought of going for a ride makes me sad, I know it'll feel better on the other side. Riding my bike won't solve all my problems, but it does make the problems easier to manage.
  • 6 1
 Thanks for sharing this Matt. The courage it must have taken to write and publish this is commendable and appreciated.
  • 1 0
 I don’t know why you got downvoted for that…
  • 2 0
 @korev: Sometimes on my iPad, it down votes when I wanted to upvote.
  • 2 0
 Well… here’s a different take. I was constantly suggested of having autism my whole life from both peers and adults from age 7 up until now basically. As a kid, I always rejected the idea because “it’s just a label, they’re not gonna actually do anything to fix it”. I also fancied the idea of piloting planes someday and medical background requires having no psychological diagnosis. As of today I think there’s zero doubt, I 100% believe that the things that give most people anger or joy are completely different to what does it for me, social skills are *still* in the garbage at nearly 30 years old, relationships are slow to form and remain shallow, whatever the 2022 definition of autism is, I believe I have it and I believe I am still completely capable of living a great and fulfilling life. If I got diagnosed today that wouldn’t change the last 30 years, it wouldn’t have changed what draws me in or what bothers me or how I react to the complications in my life, I’m really shocked to see you saying this explains so much and is an answer for unanswered behavior in your past, I’ve always seen it as the opposite; a human behaves the way he decides is right, like a human, for 40 years, then some other humans decide that behavior is too abnormal compared to most of the humans “nearby” (whether by distance or culture). People are already born different to each other. Then they get raised different to each other, learning about even more people who live like a polar opposite to everything youve known and then decide what the best course of action is for their behavior. Is it fair to even say someone is “abnormal” in 2022? The way I’ve seen it (more and more lately), is that sure, I’m psychologically abnormal to most people. I also am very disappointed in most peoples behavior and don’t want to be anything like them. I often consider myself to be living more fully than “normal” people hating their own lives and situations that seem fantastic from an outside perspective despite the repeated challenges with communication. I do suck at the social aspects of life but I’m convinced that’s actually a pretty small portion of “life” and having a perfect understanding of it is not required for happiness.

The people who claim to fully understand human society and behaviors, and believe that is the “normal” way for all people, maybe they’re the ones with brain issues.
  • 2 0
 That's a totally fine way of thinking if you're living on your own, but that's not a "right" way of thinking if you plan to have a family because the cognitive issues (issues with theory of mind, cognitive empathy) and emotional issues (alexithymia, meltdown/shutdown) are on a totally different "level" than just disagreeing with your spouse, and may cause serious problems. It is not rare for an undiagnosed autistic person to "act normal" in public (work, grocery store, etc) but to kinda "lash out" at home, which results in some sort of Dr Jekill/Mr Hyde behaviour.
If ADHD is co-morbid it can be even worse.
  • 2 0
 @Will-narayan: Totally. This is the behavior pattern for my daughter--keeps it relatively together at school (where ADHD makes it difficult to follow and frustrating) and melts down at home. It is a major stressor. For us, we definitely don't call it abnormal but we do work on strategies for her to cope with these situations. At the end of the day it's not about changing her psychology, it's giving her tools for her future.
  • 3 0
 Interacting with others at a deeper level is not necessary, as you write, though it seems to be the “desire” of most contemporary people. I think society gets too wrapped up in determiner what is normal, which leads to problems with folks feeling abnormal.

Truthfully, at an individual level, being satisfied is the goal, but I do t think society has figured out a way to allow for different ways of being, so we hammer down on anything that varies to far from the norm.
  • 2 0
 Thanks for sharing your story, Matt. I never would have expected to find this on pinkbike but my partner directed me here as I have been on a similar journey over the past year since receiving an informal diagnosis after 44 years of confusion.

I agree, the functioning labels are not helpful… while I may be functioning well in some areas I’m tanking in others, so the level and modalities of support likely look quite different for me compared to someone else on the spectrum. It’s really not as linear as high-to-low.

In my experience I've also found that having the cognitive ability has brought along with it its own set of challenges that can become disabling in their own demonic ways. I become my own worst enemy… although this could be my contradictory ADHD side that takes over from time to time.

That you’ve found success in many parts of your life without having the self-knowledge could only mean that you’ve already found so many different ways to cope and in some ways thrive… I mean, you get to ride bikes for a living?- wow! I almost wonder if having that knowledge earlier on might have meant limiting yourself from moving beyond those labels? We can never know for sure.

That forums like pinkbike are now providing the space to advocate for yourself and others alike could only mean that perhaps we’re moving towards better days in which we wouldn’t feel as though we needed to limit ourselves or be undermined by others and could easily find the support required to thrive.

I’m finding that having the self-knowledge has allowed for a great deal of self-compassion to develop, and I’m beginning to re-frame all of that emotional trauma that has occurred from various situations that left me feeling confused and in some cases downright angry. Relationships after all are a two-way street, the only unfortunate part of that equation is that we are in the minority and our world still has a great deal to learn about diversity and inclusion in so many areas. Privilege can be blinding, and I do say this from a place of privilege.

On another note, my partner is feeling rather envious of all the extra letters I’ve collected behind my name. They’re like a badge of honour since in most cases a challenge comes with a set of strengths and skills that naturally evolve. I may need to get my business cards reprinted.

Again- thanks for sharing your story so openly and honestly. I think it's great that we can just be real about it.
  • 2 0
 @korev
A PA is a Physician Assistant. PAs typically see about 85% of the patients that a physician would see, we go through very similar training as a physician, however we are not required to complete a residency, it is optional. PAs work in all fields of medicine and can diagnose, prescribe, and perform procedures. It's a good gig!
  • 2 0
 Thanks for explanation
  • 2 0
 @mattwragg You should check out the podcast "Take Your Shoes Off", hosted by stand-up comedian Rick Glassman. Although it is not specifically about autism, Rick was diagnosed with Autism in his 30s, and it is a frequent topic discussed on the podcast (he also stars in a show called "As We See It" on amazon prime, starring actors on the spectrum). His podcast has reinforced the idea that people on the spectrum should try less to be "normal", but rather that society should accept the behavour of people with autism as normal.
  • 2 0
 I've never liked labels, because they're too confining. I prefer "Joe is feeling depressed", vs "Joe has depression."

I feel like I'm low on dopamine, and riding fast down hills is an excellent antidote. Maybe it's also the experience of others who are seeking adrenal / dopamine / cheery chemical release through riding.
  • 2 0
 sure - i'm an adrenaline junkie!
  • 5 0
 Well written, good luck in finding your solution / managing strategy
  • 2 0
 Thank you.
  • 3 0
 Wonderful article @mattwragg. As someone struggling with anxiety do you have any resources, podcasts, blogs, books, etc that you would recommend on the topic?
  • 2 0
 I hadn’t heard of this PDA term, and didn’t know it was controversial:
www.spectrumnews.org/news/pathological-demand-avoidance-in-autism-explained

Thanks for writing openly about yourself.
  • 1 0
 Good article and more is needed on this topic, especially from men who find this very hard to talk about. For those who are interested I found the following tool very helpful with managing my mental health and mountain biking is a key 'filler' like it seems to be for many of us:

mhfaengland.org/mhfa-centre/resources/address-your-stress/stress-container-resource-download.pdf
  • 1 0
 Thanks for sharing.
I've done therapy for depression anxiety and rage and i don't know exactly what is my disease but there are many monsters in my past that i have to manage (family issues).
I'm 52 and just learning to make the best thing that made me happy and avoid anything that could wake up those monsters.
But they are still there.
  • 1 0
 Social media is not healthy for people who are insecure and have social issues. Social media isn't real. Sadly many become addicted to the internet. Especially those with ADHD, OCD and probably people who are on the spectrum.
  • 1 0
 Social media is equally bad for all people who use it in ways that are unhealthy, like anything, unhealthy is what unhealthy does.
  • 1 0
 I’d be hesitant to be labeled and prescribed meds. I’ve been labeled and realizing I don’t learn like most people was the only thing that’s helped. I’m 42. I operate differently than most. No alcohol or drugs for me. Rest, and something to focus on. Projects to challenge my head and hands. Good luck.
  • 2 0
 If you were diagnosed and treated for diabetes, hypertension, heart disease, would you be just as hesitant?

Even though it’s kinda cringeworthy to see an uptick in people’s willingness to be open about their mental health, perhaps that’s what is needed to overcome the stigma?
  • 2 0
 Yes I would. Lifestyle can make or break all these things. I don’t believe drug manufacturers have anything but profits on their agenda. @sanchofula:
  • 1 0
 @chileconqueso: of course they do, as does any business that manufactures products for sale, even Pinkbike is a business that is profit oriented.
  • 1 0
 I think the fact we have for profit healthcare removes the incentive for people to get healthy. Buy the pill, create dependency on the pill. Oh man it’s like they are drug dealers. With a license. Lots of modern medicine is fantastic and I’m all for living longer if I’m healthy. If some meds help, it’s
Great. If I can fix it with a lifestyle change that’s even better. I’m a little more hesitant than most. I had 2 strokes after a vaccination in 2021. @sanchofula:
  • 1 0
 Thanks for the words, Matt. I'm personally on very much the same page as a lot of others are commenting. My 9yo son is in the process of being diagnosed with ASD and ADD, after three horrible years for him. And Im up next. Myself, I've been down the hole big time, but on the way up. Not every day, but most days it's getting a wee bit better. I've been to therapy as well. Various. But the one that seriously worked for me, was when I started in Nature Therapy. Basically, we go out for 24 hours in nature's own clinic, and use it as a framing for the session. There is so much in regards to my self esteem, self worth, love of my self and finding ME that is now linked deeply in my sensory system to the sound of birds, the way leafs flicker in the light, and the smell of moist soil. All of these, and every one of them, reminds me on a subconscious level, of the direction I'm travelling. It has become much stronger than 'just riding my bike' for me. I Can thoroughly recommend this as an alternative to the traditional setting and duration of therapy. God speed on everyone's journey. Thank you all for sharing
  • 1 0
 Great article Matt. It can't have been easy to write that. As a father of a soon to be 3yr old who has just had his formal diagnosis the subject is something that interests me as much as it terrifies me. My wife and I just want him to have as normal life as possible.
  • 1 0
 I wish you all the best. On a cycling topic, I can recommend Jack Ultra Cyclist. I really appreciate all he has to say and he's working hard to raise donations for charities that benefit mental wellbeing. Also, just to note that I recently heard an ad for this podcast ... The Loudest Girl in the World is a new podcast that tells the story of Lauren's journey to understand what the hell it means to be on the autism spectrum and how to live life as a newly diagnosed autistic person.
  • 1 0
 As someone who works in the field of Applied Behavior Analysis, I've been working with individuals with ASD for over 10 years. I've worked with plenty of children and young adults who are significantly impaired and need support for even the most basic tasks. I've also worked with children who have gone on to attend college and obtain full time employment. Your possible diagnosis does not define you as a person. I know it feels like a bomb was dropped on your life but you will find the support you need and things will get better! You got this!
  • 1 0
 I have also struggled for much of my life with mental health and I relate to a lot of how you described your experiences. I've found that my faith has a helped me immensely in that process or putting one foot in front of the other, and just moving forward. It can be so hard sometimes but that's where my faith in Jesus catches me and helps propel me forward. I'm not making this up just to advertise my faith, but I also don't want to avoid sharing a part of my life that may be helpful to others. You're doing great Matt! Keep going Smile
  • 1 0
 Congratulations are due to you, Matt. You have given your best, every year here, to wear away at the stigma of mental illness. Having grown up with a brother who was diagnosed at 16 years old with schizophrenia, I'm all too aware of how our society stigmatizes and shames the mentally ill. AND their families... Through PB, you are succeeding in minimizing that stigma with the MTB community. Good on you.
  • 1 0
 just think of it. if you live your life and experience only what you live. how can you know what is somthing else. so just dig deep into yourselve with reasoning and you'll be good.
  • 3 0
 we found out about 15 years ago that my dad has Asperger's and now my whole childhood makes sense...
  • 1 0
 That was a good read. I like so many others discovered late in life that I'm on the spectrum so I can very much relate with your words. Thanks for that Matt.
  • 2 0
 All this talk about mental health and yet the world is the craziest ever been.
  • 1 0
 Thanks @mattwragg . I think you've put into words all the things I'm feeling. I'm in a very similar boat and I wish you the best. It's tough.
  • 2 1
 The terrestrial plane is tough place to exist, it's not free to be here, so it causes a lot of stress on everyone.
  • 1 0
 Luckily never suffered any major health issues...but riding does keep things in perspective!!!
  • 1 0
 For a dose of good MTB mental health, check out the berm page:
www.facebook.com/dominionofdirt
  • 1 0
 I was just introduced to 'The Blindboy' podcast @mattwragg - check out episode 238, but I'm guessing any will do.
  • 2 3
 Opinion: Stuck in the middle - Crankworx Cairns with dual slalom, slope style, dh, and ZERO BIKE CHECK ARTICLES. This is what stuck in the middle really is.
  • 1 0
 Great read. Love the openness.
  • 2 1
 Oh my God!!
  • 1 0
 Excellent article
  • 1 0
 Thank you!
  • 1 0
 Thanks for sharing.
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